From Care to Cure: 2018 MGH FTD Unit Education Day
Massachusetts General Hospital’s Frontotemporal Disorders Unit 7th Annual Education Day, From Care to Cure, will take place on Friday, April 6, 2018 at the Westin Waltham Boston Hotel. This event will bring together over one hundred and twenty patients, caregivers, clinicians, staff members, and community partners for a day of education and community building.
Frontotemporal Disorders (FTD) are a group of progressive neurological disorders with no known treatment to slow or stop their progression. This cruel disease robs patients of core human characteristics, their ability to work, communicate, and live their lives fully. FTD has a terminal prognosis. The scientific community is making progress with new pathological discoveries. Here at MGH, we are at the cutting edge of those discoveries, but there is more to be done. We have worked closely to engage families in research and community partners in efforts to provide the highest quality of care.
From Care to Cure draws together participants from across New England to learn about the latest scientific discoveries; to connect with patients, caregivers and community resources; and to engage in workshops to navigate life with FTD.
9:00 – 10:00 Registration & Resource Tables
10:00 – 12:00 Understanding Frontotemporal Disorders
10:00 – 10:45 Overview of Frontotemporal Disorders
- Brad Dickerson, MD, Director, MGH FTD Unit
10:45 – 11:05 Neuropsychological Assessment: How We Use It Clinically and in Research for FTD
- Bonnie Wong, PhD/ABPP-CN, MGH FTD Unit
11:05 – 11:25 Understanding Primary Progressive Aphasia
- Megan Quimby, MS, CCC-SLP, MGH FTD Unit
11:25 – 11:45 Current Research for FTD
- Scott McGinnis, MD, MGH FTD Unit
11:45 – 12:05 FTD in the Community: Events and Advocacy
- Katie Brandt, MM, MGH FTD Unit
12:15 – 1:15 Lunch
12:45 – 1:15 Keynote
Frontotemporal Disorders Unit Caregiver Education Address:
Moving Beyond Sedation: The DICE Approach
Helen Kales, MD, Director, Program for Positive Aging, Michigan Medicine, University of Michigan
1:30 – 300 Workshops
3:00 Close of 2018 FTD Education Day
2018 Workshop Topics
Attendees will choose one 90-minute workshop or two 45-minute workshops to attend during our afternoon session, 1:30PM – 3:00PM
Putting DICE Into Practice to Assess and Manage Behaviors
This highly interactive workshop is an opportunity for care partners to learn more about the philosophy behind non-pharmacological approaches to behavior management and practice utilizing DICE.
*Participants are invited to bring real case examples
Presenter: Helen Kales, MD, Michigan Medicine, University of Michigan
FTD Unit Staff Support: Katie Brandt
Patient Question and Answer with FTD Unit Clinicians
This workshop is targeted to early-stage patients and care partners. Participate in a roundtable discussion with Brad Dickerson, MD and clinicians from the MGH Frontotemporal Disorders Unit
Beyond Words: Functional Communication Strategies for Primary Progressive Aphasia and Frontotemporal Disorders
This workshop is targeted at caregivers who see communication as the most challenging aspect of their loved one’s condition. Participants will discuss reasons for communication issues and learn strategies to maximize current communication and support continued connections.
Presenters: Joyce Shapiro Gordon, MS, CCC-SLP, MGH Speech and Language Therapy and Megan Quimby, MS, CCC-SLP, MGH FTD Unit
Setting Yourself Up for Caregiver Success
This workshop is targeted at caregivers who have questions about their role as a caregiver. It will focus on building a foundation that includes thoughts on building a care team and accessing community resources with an emphasis on caring for the caregiver at every stage.
Presenters: Barbara Moscowitz, LICSW and Susan Marie Rowlett, LICSW, MGH Dementia Caregiver Support Program
Legal and Financial Considerations for FTD
Brian Delaney is a member of the MA Chapter, National Academy of Elder Law Attorneys (NAELA) and will present information and answer questions about estate planning, elder law, Medicaid planning and MassHealth eligibility within the context of an FTD diagnosis.
Presenter: Brian Delaney, Attorney at Law, Law Offices of Delaney and Delaney
Sponsorships are available, contact Katie Brandt at Katherine.Brandt@mgh.harvard.edu with any questions for sponsorship or attendance.